I am deeply,deeply moved by all the lovely messages,and comments,on here,on facebook,on call for support.what can i say?thankyou seems so inadequate.but is all i can say.i have always tried to be there for anyone who needs a friendly ear,and i think anyone who knows me knows i will help in any way i can,if they are down,in trouble,hurting. its what i do.and now its my turn for pampering lol.thankyou everyone. it is appreciated so much.
One thing i didnt put,as i was walking from the Hospital car park for my appointment i had the most terrible pain i think i have ever known in my life strike in my right leg.it hurt.so much so that coming out after the car seemed miles away.anyway i made an appointment to see Dr.M this morning,A,to keep him informed what is happening,B,to find out what ive done to leg.i really thought i had pulled hamstring.instead it is phlebitis.i knew i had bad varicose veins just behind knee,and that is what is causing the pain.i am rubbing voltarol gel in 3 times a day.anyone got a cat that widdles a lot??because that would be as effective,lol. but the pain is not so bad today as it was,and it does feel a bit easier.i have not been able to get in touch with a social worker yet so have not been able to ssort out mums care when i go into hospital.hope i can early next week.
Now for something different. summer. can anyone tell me where it went??? i am so sure i read at the start of june that we were going to have a lovely hot summer.instead we have had rain,high winds that have ruined the flowers and runner beans,although i am getting reasonable crop from them,and cold.whatever the weather has been where you are i hope you have had a good summer,and once again,many thanks.take care all,mort
Friday, 12 August 2011
Thursday, 11 August 2011
worrying times.
Well,as many of you will have seen on Facebook,and i must thank the many friends for their comments,emails and messages on there,I have more problems. first back,the scan results came back tuesday,the scan shows that my back is basically........well,not good,lol.but,it hasn't got any worse,so that is good,and i will not be having any operation in the forseeable future,just be sensible,and keep taking painkillers and exercise.the op.to fuse the vertebra is too dangerous to consider while i am able to move ok.thats the good news.
Now for the bit that has turned things upside down. Yesterday i went back to Norfolk and Norwich Hospital about my voice.appointment was 3.40,but it was 4.10 before i was called in.another Dr.saw me,asked how i was feeling,noted my voice seems stronger,then came the dreaded camera up nose bit.left nostril this time.and much longer examination.and i felt it scrape my throat,right at the back.then it was removed,and the Dr said,your throat,very swollen. now,i know its swollen.has been for ages,going right back when i had tonsil removed. but this time the Dr.seems concerned.felt all round glands at back and side of neck. then dropped the bombshell. " there may be something wrong mr.lake,i need to get you in so we can perform an exploratory operation,do a biopsy on the tissue.and further tissue may need to be removed." i just sat there. how soon? as soon as possible mr.lake. and,how long will i be in hospital?.well.perhaps just 1 day,maybe 2,3,or more,depending on what we find. the nurse prepared consent forms,and the Dr.wrote out a prescription for Gaviscon,as he wants me to take it every night before i go to bed.it is an antacid,he wanted me to go down to pharmacy and get it there,but after the last time i asked if it was ok if i get it today from my own surgery.and this i did.just wanted to come home. the nurse explained i would have to go for a pre-op assessment,and then the operation will be done as soon as possible.i explained im a 24/7 carer and i just cant come into hospital at 24 hours notice,i need at least 2 weeks warning. so i then went to reception and handed in a booking in form,and was told i am on the waiting list and will hear very soon, and came out. ok,i sneaked a look at that form.its suspected that i have a condition caused by acid reflux.i was checked several years ago as i have a hiatus hernia.when you are asleep acid from your stomach comes back up the oeophagus and causes burns on the lining,which is what causes the hiatus hernia. there is the chance that this can cause oral cancer in later years.and that little word was also mentioned on the booking in form. and is what the biopsy is for of course. i came home in a daze.told mum on phone i needed to go in for an op.and Carol kept with her til i got home.
i have got to get in touch with social workers,carers,etc. so much to sort.it maybe just the one day.please. so,that is my news. good wishes appreciated.prayers if you wish.whatever it is,i will deal as i always deal.one day at a time.as always i will keep you all informed.thanks for being there for me everyone.it is appreciated so much.
LASTLY,CAN I JUST CONDEMN THE AWFUL VIOLENCE,LOOTING,AND RIOTING THIS COUNTRY SAW EARLIER IN THE WEEK.MAY THOSE RESPONSIBLE BE BROUGHT TO JUSTICE SOON.and pray that peace will prevail once more.stay safe,take car all,mort
Now for the bit that has turned things upside down. Yesterday i went back to Norfolk and Norwich Hospital about my voice.appointment was 3.40,but it was 4.10 before i was called in.another Dr.saw me,asked how i was feeling,noted my voice seems stronger,then came the dreaded camera up nose bit.left nostril this time.and much longer examination.and i felt it scrape my throat,right at the back.then it was removed,and the Dr said,your throat,very swollen. now,i know its swollen.has been for ages,going right back when i had tonsil removed. but this time the Dr.seems concerned.felt all round glands at back and side of neck. then dropped the bombshell. " there may be something wrong mr.lake,i need to get you in so we can perform an exploratory operation,do a biopsy on the tissue.and further tissue may need to be removed." i just sat there. how soon? as soon as possible mr.lake. and,how long will i be in hospital?.well.perhaps just 1 day,maybe 2,3,or more,depending on what we find. the nurse prepared consent forms,and the Dr.wrote out a prescription for Gaviscon,as he wants me to take it every night before i go to bed.it is an antacid,he wanted me to go down to pharmacy and get it there,but after the last time i asked if it was ok if i get it today from my own surgery.and this i did.just wanted to come home. the nurse explained i would have to go for a pre-op assessment,and then the operation will be done as soon as possible.i explained im a 24/7 carer and i just cant come into hospital at 24 hours notice,i need at least 2 weeks warning. so i then went to reception and handed in a booking in form,and was told i am on the waiting list and will hear very soon, and came out. ok,i sneaked a look at that form.its suspected that i have a condition caused by acid reflux.i was checked several years ago as i have a hiatus hernia.when you are asleep acid from your stomach comes back up the oeophagus and causes burns on the lining,which is what causes the hiatus hernia. there is the chance that this can cause oral cancer in later years.and that little word was also mentioned on the booking in form. and is what the biopsy is for of course. i came home in a daze.told mum on phone i needed to go in for an op.and Carol kept with her til i got home.
i have got to get in touch with social workers,carers,etc. so much to sort.it maybe just the one day.please. so,that is my news. good wishes appreciated.prayers if you wish.whatever it is,i will deal as i always deal.one day at a time.as always i will keep you all informed.thanks for being there for me everyone.it is appreciated so much.
LASTLY,CAN I JUST CONDEMN THE AWFUL VIOLENCE,LOOTING,AND RIOTING THIS COUNTRY SAW EARLIER IN THE WEEK.MAY THOSE RESPONSIBLE BE BROUGHT TO JUSTICE SOON.and pray that peace will prevail once more.stay safe,take car all,mort
Monday, 25 July 2011
So,who DOES care???
As i wrote in my last post i had the camera up my nose to check vocal chords.and it bloody hurt.you talk about speedy gonzales,lol.it was shoved up before i could say,will it hu........yep.he looked,said oh. have you been on antibiotics lately??Yes says i.about 10 lots in the last year,keep getting chest infections,why?well,you have got mushrooms growing!!! hey??? thinking of pick your own,lol. apparently i have Thrush growing on my vocal chords.those damn antibiots kill all the good bacteria as well as the bad,result,fungal infection,AKA Thrush.so he said i will write a prescription,go to Pharmacy.now i know the pharmacy. you abandon all hope going there. sure enough it took 45 minutes before i had the tablets.guess?yep,more antibiotics to fight the infection caused by antibiotics. got to go back in 4 weeks time so he can check if it has cleared,and so he can see the vocal chords properly.i didnt get home til 6.my mate took me from his,but next time is later so i will drive myself.oh the joy.a sore nose and nothing to show for it.
Now,as well as MS many of you are aware i also suffer from back trouble,one disc was removed many years ago,and another has burst,thanks to the dear old lady on a mobility scooter who forced me to slip off the pavement kerb 2 years ago.now that disc is really giving me problems,so much so a few weeks ago i went and saw Dr.M,who took one look at me hobbling in with my walking stick,and said,back or MS?back i said.all i did was bend froward to get something out of a cupboard,didnt even go right down,just bent forward.and it went out.and for 3 weeks i was in agony,and nothing eases the pain.no ice,not heat,tablets,nothing helps.he examined me on the couch,said,mort,you really dont have reflexes.lol.i know thanks.and said he would order an MRI scan to be done.the last was 2 years ago.Then i was told i couldnt have an operation on the back due to heart,and being on blood thinners.those have now been finished with long ago,so he wants another scan done to see if an operation to fuse 5 vertebrae is possible,and if it is,will it help?also put me on some new tablets which i had to stop as they made me so sick.did warn me they may. he was right.big time.
So,last week i got a letter from Cromer Hospital,an MRI is being done this thursday evening at 5.50PM. strange time but they are so backlogged with scans they are scanning until 10 at night. Now,i used to go to Myras every week,so i know how long it takes to get there,and bearing in mind it is now holiday time and our roads are full,i knew it will take at least nearly 3 hours travel and scan time.a scan can take up to 45 minutes.so i rang Crossroads carers. carers for carers. Carol comes here every wednesday to allow me some time for myself,often i go to bed or go to mates.now,usually in the past,if i had hospital Sue would let me have my wednesday,by putting the appointment down as a "short break at short notice",ensuring i still got some time off.so,imagine my surprise when i rang them,i will ring you back the girl said,well we had to go out later that day,and we got home to find a message on the answer phone.hello morton,its crossroads,carol can do that thursday,BUT,i am afraid you cannot have the wednesday as well.sorry. best we can do.you are only allowed 3 hours a week now. i thought,well at least mum will have company at night while i am out,and i didnt mind too much.nothing planned for the wednesday.but i did feel a bit down,its nice to have that few hours "me"time.
Anyway,the next morning i rang them,and got Sue.i told her i was ringing to thank them for getting me cover at night,which i know is always difficult and that i was grateful carol was coming,mum likes her a lot.she said,mort,i so wanted to give you your wednesday as well.i just cant do it im sorry. there is no money available for short breaks at the moment.i asked well,what if i had 2 appointments in 1 week?as sue says,many carers can and do have just that problem. i am not the only carer in ill health.she said,if it is an emergency i will make sure you are looked after,but things are really bad.apparently the whole Swifts,night owls,and relief carer situation is under threat from under funding and the savage cuts that have been forced on the local council by the coalition government.and sue told me i may be better off seeing if i can switch to self funding.not going into all the ins and outs of that here.all i will say is that Sue was really upset she couldnt do more for me,but i was just grateful i had cover.she has always been so good to help in the past i am not complaining about her or her staff.they hate this situation.
BUT. as i said,i am not the only carer with ill health. there are many elderly carers,who are caring for middle aged handicapped children,or a senile partner,or even parents,as i care for mum.if the care provision is being cut,and we lose our relief carers,WHO WILL HELP US CARE??Daily it seems as though care home after care home is closing,respite care is being cut,funding is being lost every day. so,just WHO WILL CARE??? not this damn government,or councils.social services have lost huge ammounts off their budgets,money that should be there to help people who need 24 hour care is not available.some can call on other family members,i dont have that to fall back on,i cant rely,nor do i want to have to rely,on neighbours or friends to help me.so,if i did have to have an operation,let us say,on my back,just WHO is going to care for my mum??she gets confused and scared when she has strange carers as it is,if she does not know them she worries.what will happen to her if i cannot carry on??who will look after the many thousands of people just like her?WHO CARES???
THE CARE OF THE ELDERLY AND HANDICAPPED IN THIS COUNTRY IS NOW A DISGRACE.and it is one that is only going to get worse. so ask yourself this,in maybe 5 years time,if YOU or your loved ones need care,either in their own homes,or in a care home,just WHO will care for them?? I and thousands more like me save this country millions in care costs.but at the end of the day...................JUST WHO CARES????? take care all.
Now,as well as MS many of you are aware i also suffer from back trouble,one disc was removed many years ago,and another has burst,thanks to the dear old lady on a mobility scooter who forced me to slip off the pavement kerb 2 years ago.now that disc is really giving me problems,so much so a few weeks ago i went and saw Dr.M,who took one look at me hobbling in with my walking stick,and said,back or MS?back i said.all i did was bend froward to get something out of a cupboard,didnt even go right down,just bent forward.and it went out.and for 3 weeks i was in agony,and nothing eases the pain.no ice,not heat,tablets,nothing helps.he examined me on the couch,said,mort,you really dont have reflexes.lol.i know thanks.and said he would order an MRI scan to be done.the last was 2 years ago.Then i was told i couldnt have an operation on the back due to heart,and being on blood thinners.those have now been finished with long ago,so he wants another scan done to see if an operation to fuse 5 vertebrae is possible,and if it is,will it help?also put me on some new tablets which i had to stop as they made me so sick.did warn me they may. he was right.big time.
So,last week i got a letter from Cromer Hospital,an MRI is being done this thursday evening at 5.50PM. strange time but they are so backlogged with scans they are scanning until 10 at night. Now,i used to go to Myras every week,so i know how long it takes to get there,and bearing in mind it is now holiday time and our roads are full,i knew it will take at least nearly 3 hours travel and scan time.a scan can take up to 45 minutes.so i rang Crossroads carers. carers for carers. Carol comes here every wednesday to allow me some time for myself,often i go to bed or go to mates.now,usually in the past,if i had hospital Sue would let me have my wednesday,by putting the appointment down as a "short break at short notice",ensuring i still got some time off.so,imagine my surprise when i rang them,i will ring you back the girl said,well we had to go out later that day,and we got home to find a message on the answer phone.hello morton,its crossroads,carol can do that thursday,BUT,i am afraid you cannot have the wednesday as well.sorry. best we can do.you are only allowed 3 hours a week now. i thought,well at least mum will have company at night while i am out,and i didnt mind too much.nothing planned for the wednesday.but i did feel a bit down,its nice to have that few hours "me"time.
Anyway,the next morning i rang them,and got Sue.i told her i was ringing to thank them for getting me cover at night,which i know is always difficult and that i was grateful carol was coming,mum likes her a lot.she said,mort,i so wanted to give you your wednesday as well.i just cant do it im sorry. there is no money available for short breaks at the moment.i asked well,what if i had 2 appointments in 1 week?as sue says,many carers can and do have just that problem. i am not the only carer in ill health.she said,if it is an emergency i will make sure you are looked after,but things are really bad.apparently the whole Swifts,night owls,and relief carer situation is under threat from under funding and the savage cuts that have been forced on the local council by the coalition government.and sue told me i may be better off seeing if i can switch to self funding.not going into all the ins and outs of that here.all i will say is that Sue was really upset she couldnt do more for me,but i was just grateful i had cover.she has always been so good to help in the past i am not complaining about her or her staff.they hate this situation.
BUT. as i said,i am not the only carer with ill health. there are many elderly carers,who are caring for middle aged handicapped children,or a senile partner,or even parents,as i care for mum.if the care provision is being cut,and we lose our relief carers,WHO WILL HELP US CARE??Daily it seems as though care home after care home is closing,respite care is being cut,funding is being lost every day. so,just WHO WILL CARE??? not this damn government,or councils.social services have lost huge ammounts off their budgets,money that should be there to help people who need 24 hour care is not available.some can call on other family members,i dont have that to fall back on,i cant rely,nor do i want to have to rely,on neighbours or friends to help me.so,if i did have to have an operation,let us say,on my back,just WHO is going to care for my mum??she gets confused and scared when she has strange carers as it is,if she does not know them she worries.what will happen to her if i cannot carry on??who will look after the many thousands of people just like her?WHO CARES???
THE CARE OF THE ELDERLY AND HANDICAPPED IN THIS COUNTRY IS NOW A DISGRACE.and it is one that is only going to get worse. so ask yourself this,in maybe 5 years time,if YOU or your loved ones need care,either in their own homes,or in a care home,just WHO will care for them?? I and thousands more like me save this country millions in care costs.but at the end of the day...................JUST WHO CARES????? take care all.
Tuesday, 12 July 2011
summ---er garden pics.if we get that summer.
FRONT BOARDER
FIRST YEAR FOR THESE CARNATIONS,GIVEN A LOVELY SHOW
BUSY LIZZIES AND PETUNIAS,WITH SOME TUBEROUS BGONIAS
AHEM. YES WELL,hangs head in shame,lol. it was cheap ok.very cheap.cost me £5,99,which is around 10 bucks for Lucy and jack,lol.its resin,sun dial as you can see,stands around 4 foot tall.the gnome is a solar light that comes on at night,£3 or 2 for a fiver.cant be bad.same with the ones you can see on the ground,theres 2 that look like rocks and 2 frogs,all 2 for £5.supermarkets are getting the place to go if you want cheap garden lighting.
i do have quite a nice show this year,the weather has been not too bad,dry,so i have had to water,a lot of wind,but not too vicious.
Tomorrow,wednesday i go to Norwich Hospital to Ear,Nose,and Throat for camera down throat.my MS consultant is not convinced my weak voice is all due to the MS so wants vocal chords checked to make sure there is nothing nasty on them.as the camera goes up nostril it is not a particularly pleasant procedure.my mate is going to take me from his,so i dont have to drive so far.I will let you all know the result as soon as i hear.in the meantime i hope summer finally makes its mind up and stays for us all.it is really cool tonight again,about time we got nice warm nights,not that many yet.take care all.
FORGOT THESE ONES,MY PURPLE CLEMATIS,USED TO GROW UP MY SADLY DESTROYED ROSE ARCH.NOW TRAILS ALONG THE RAILINGS.
THIS REPEATED ITSELF AND I CANT REMOVE IT,LOL. THEY ARE GROWING WELL.
Thursday, 7 July 2011
IN MEMORY
IN MEMORY OF THOSE PEOPLE KILLED AND INJURED IN THE LONDON BOMBINGS.
6 Years ago today.We will never forget the atrocities committed against innocent men,women,and children.Neither can we forget that this can so easily happen again.
GRATEFUL THANKS ARE DUE FROM ALL OF US TO OUR SECURITY FORCES AND POLICE FOR THE PROTECTION THEY AFFORD US,AND THE DANGERS THEY FACE EVERY DAY. take care all.
Monday, 4 July 2011
FOR ALL MY AMERICAN FRIENDS
I WISH EVERY ONE OF MY FRIENDS IN THE UNITED STATES OF AMERICA A VERY HAPPY 4TH OF JULY.GOD BLESS AMERICA.
I have'nt been reading many blogs lately,the odd one,somehow i just can't get motivated these days.but i try and keep up with those of you on my friends list on Facebook.I shall be posting some pictures of the garden soon,and promise to let you all know what is happening in my life.I will just say i had a lovely surprise when my good friend Jayne came to see me from Cornwall,we had a lovely day in Wells next sea,and it was lovely to meet her after all the time we have been chatting on the net.Hope everyone is keeping as well as can be,will post soon,take care all.
Friday, 10 June 2011
SAD NEWS.
I have already posted on facebooks call for support a short time ago,but i know many of you do not use facebook. i have just heard from my dear friend Margaret over in Northern Ireland,that her beloved sister Sheila just lost her fight against cancer.i know Margaret is devastated at the loss,and i mourn her sisters passing.please pray for Margaret,she is a good friend,who has always been there for me when i was down.thankyou all.
Also,i do not know how many of you saw the article on the young 15 year old terminally ill cancer sufferer Alice in the news? she has just started a new blog,alices bucket list about all the things she wants to do in the time she has left.Alice's Bucket List: Hello :) will take you to her blog.i was humbled to read this amazing girls blog. It puts my problems into a different perspective. please leave a comment for Alice,she deserves it.
And finally,i am sorry i haven't posted lately,or been reading blogs.somehow i lost my way,what with breaking up with my friend,( and yes,we are STILL friends,we speak on phone every week)worry about mum,who is getting very forgetful and vague,and in so much pain with arthritis,not to mention a very nasty septic finger that required a course of antibiotics to shift,my own health problems,MS is bad,and my back is making me very depressed and down.All came together recently and i just had enough. money worries do not help either i may add.I hope i can put the past behind me now and move on,so hopefully more posts will be appearing soon.Thanks to Lucy,Herrad,and Beth,and of course Guido for keeping in touch with me,and indeed many more of you have sent emails and messages asking how i am,very kind of you all.
FOR ALL THOSE IN PAIN,SUFFERING THE LOSS OF LOVED ONES,THE SICK,TERMINALLY ILL,AND THOSE WHO ARE SAD AND DEPRESSED,MAY YOU ALL FIND PEACE,and for those who believe,let us pray that cancer and other serious diseases will one day be cured. thankyou for reading,take care all. Mort xx
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