CARING AND SHARING WAS 2 YEARS OLD ON 21ST OF OCTOBER. and i forgot,lol.says a lot i think.what started out as a journal about me caring for mum has turned into a journal about my health problems.but then that is what life is about.change. a year ago jland finished,and many gave up blogging.i nearly did myself.but sometimes its good to put your thoughts down.clears the mind.
Yesterday i went and saw Linda my MS nurse.she has had a move to Cromer,seaside town on the coast.17 miles from me.it has been so warm these past few days it was lovely to drive along with the window down.late october and temperatures nearly reaching 20c.i found her new place,a very nice rehabilitation and convalescent home.lindas even got a decent sized office,which she has soon filled lol.i explained i had been getting a lot of pain from the MS,optic neuritis and neck pains.we had a long talk,and said that basically there is nothing much they can do for me.my MS can now be called secondary progressive.i always have some symptoms,often a lot,and it is progressing.I.E.getting worse.but the good news is that she is pretty sure it wont go to anything worse.mainly due to my age.so lucy,stop worrying.i know you.lol. the reason i cant have any different tablets is because of the heart meds i am on.which i knew.i go to see Dr.C in january,and linda will be in touch with him before then to bring him up to speed about my heart problems,and also the back.i go 11th november to discuss if i am going to try injections in the vertebra,or maybe fusion of 4 vertebra.
Unfortunately it seems i am still getting angina,albeit not so bad,so what will happen when i see the heart specialist im not sure.we shall see.
And so to the start of my 3rd year of a journal writer.and ive come full circle.because i am waiting for yet another carers assessment,just as i was 2 years ago,they were supposed to have been in touch long before now.i feel a phonecall will be needed lol.mum went to the chiropodists monday,a nice young man,lol,did her feet.the gout has returned as it is prone to do,and he dressed her feet for her and generally made a good job of treating them. she is getting worse,memory wise,forgets the names of things,gets confused. gets scared if i arent here.and yes,its got a lot harder for me to cope.i have asked for an extra call at night,to help her get undressed and ready for bed,but i am still waiting to hear.while i can i am her carer.there is no way that is going to change.but i do need more help.whether i get it??we shall see in the coming year ahead.i do apologise to you my readers,i often dont read your blogs,often even poor lucy gets missed.but i am still going to write in this tatty old journal,bit dogeared and worn though it is,not so often as i did,but if there is something to share,then share i will. because i realised only just recently,i do the sharing,and you,the new jland,my fellow blog writers and readers,you do the caring.and i thank you all. take care all.
HAPPY HALLOWEEN TO YOU ALL.