Thursday, 29 October 2009

2 years on.we progress

CARING AND SHARING WAS 2 YEARS OLD ON 21ST OF OCTOBER. and i forgot,lol.says a lot i think.what started out as a journal about me caring for mum has turned into a journal about my health problems.but then that is what life is about.change. a year ago jland finished,and many gave up blogging.i nearly did myself.but sometimes its good to put your thoughts down.clears the mind.

Yesterday i went and saw Linda my MS nurse.she has had a move to Cromer,seaside town on the coast.17 miles from me.it has been so warm these past few days it was lovely to drive along with the window down.late october and temperatures nearly reaching 20c.i found her new place,a very nice rehabilitation and convalescent home.lindas even got a decent sized office,which she has soon filled lol.i explained i had been getting a lot of pain from the MS,optic neuritis and neck pains.we had a long talk,and said that basically there is nothing much they can do for me.my MS can now be called secondary progressive.i always have some symptoms,often a lot,and it is progressing.I.E.getting worse.but the good news is that she is pretty sure it wont go to anything worse.mainly due to my age.so lucy,stop worrying.i know you.lol. the reason i cant have any different tablets is because of the heart meds i am on.which i knew.i go to see Dr.C in january,and linda will be in touch with him before then to bring him up to speed about my heart problems,and also the back.i go 11th november to discuss if i am going to try injections in the vertebra,or maybe fusion of 4 vertebra.

Unfortunately it seems i am still getting angina,albeit not so bad,so what will happen when i see the heart specialist im not sure.we shall see.

And so to the start of my 3rd year of a journal writer.and ive come full circle.because i am waiting for yet another carers assessment,just as i was 2 years ago,they were supposed to have been in touch long before now.i feel a phonecall will be needed lol.mum went to the chiropodists monday,a nice young man,lol,did her feet.the gout has returned as it is prone to do,and he dressed her feet for her and generally made a good job of treating them. she is getting worse,memory wise,forgets the names of things,gets confused. gets scared if i arent here.and yes,its got a lot harder for me to cope.i have asked for an extra call at night,to help her get undressed and ready for bed,but i am still waiting to hear.while i can i am her carer.there is no way that is going to change.but i do need more help.whether i get it??we shall see in the coming year ahead.i do apologise to you my readers,i often dont read your blogs,often even poor lucy gets missed.but i am still going to write in this tatty old journal,bit dogeared and worn though it is,not so often as i did,but if there is something to share,then share i will. because i realised only just recently,i do the sharing,and you,the new jland,my fellow blog writers and readers,you do the caring.and i thank you all. take care all.

HAPPY HALLOWEEN TO YOU ALL.

14 comments:

Lisa said...

Mort, you are always in my prayers, Love and Hugs Lisa xxxxx

Bucko (a.k.a., Ken) said...

Happy Blogversary :o)

jack69 said...

Glad you are still around the internet. Always enjoy reading and following the trials, tribulations and the few successes. I alos like following a tough guy!!

Lori said...

Happy Anniversary to your blog Morton! It's good to see see a post from you and hope you and your mum are doing well.

I'm mostly known as 'MA' said...

I'm glad you are hanging in there with blogging. I think you are right it is good to keep in touch and blogging is a great way to do it. There are lot of caring people in our community of bloggers. I only know you from others that have cared. I'll be praying you do get the extra help.

LYN said...

I AM STILL BLOGGING...I DID TWO THIS WEEK!! I SURE MISS THE OLD DAYS THOUGH....THE PING PING OF ALERTS....
HAVE A GREAT WEEKEND...

Lucy said...

You blog and I will read. I know you have your hands full with MS, Heart and Mum. We kept my mom home but as you know Mort, it is not always easy. Our biggest worry was the gas stove and she was able to walk around and if she got out, even at the end of the sidewalk was lost. I will worry Mort. but I promise not to nag. Please take care of yourself.

Indigo said...

Congratulations on 2 years dear friend. Delighted to have gotten to know you through blogging. (Hugs)Indigo

Jenny said...

Glad to hear you are still going to blog. I have just started again after a break.

Jenny <><

pam said...

Hey my fav other man. Thanks for the comment and I hope you get your pain under better control. I break a lot of dishes! lol. On a serious note, you should definately be getting more help with carers. Have you tried the social work department? Usually gets the ball rolling. As for your blog? I don't know where I would possibly be without you! You moan all you like. You are my mort and I love you to bits. Roll on another 2 years and many many more. Love Pam. xx

Valerie said...

Hi Mort! Happy Anniversary to your blog! I hope today finds you well. Thanks for stopping by Joy in the Rain. I am glad I found you. Gee, I have lost touch with so many over the past year. It is very sad to me. I think alot former AOL journalers are playing on facebook and twitter and other social sites. You take good care, my friend. I will be back. Love, Val xox

Herrad said...

Hi Mort,
Came by to say hello and wish you a good Halloween weekend.
Love,
Herrad

Sugar said...

just a quick comment to let you know my old blog is closed, but i have 2 new ones. hope you've been by, if not come visit & sign in to follow. huggies...
links are on old blog.
if you've already been, ty!

Beth said...

Happy blogiversary, Mort! I'm glad to hear you are hanging in there, and send you nothing but good thoughts. Hugs, Beth