Monday, 31 December 2012
i had so much trouble getting mum decent carer,the one we had was in and out in under 10 minutes,hardly spoke to her.and one night i put cream on her back and being blunt she smelled unwashed.so i raised hell with office.sent a nice carer out,L,she was in tears nearly.took 2 bowls water,and mum had huge pressure sore the size of a 50 pence piece on her bottomn.no way any decent carer doing there job could have missed that.so nurse was coming in twice a week dressing it.thankfully it cleared up.L is our carer now,mum likes her,and she cares about mum.but she forgets so much.is so much worse than she was this time last year.Dr did put her on tablets to try and help memory loss,but she was so sick.as he said,is it worth it?not fair on her.92 in 3 days time.
as for me,i fall about,i slur my words,right eye has a problem with spatial awareness,swallowing still bad,pain,all worse.back is completely shot to hell.disc crushed,and basically its just pain management.myy garden hasnt been done this year,only kepy tidy.julie is coming in the spring to clean pond out.good friend to me.known her 36 years now.(possibly loved her as long too lol)i get tired so easily now,still have angina attacks too.but tablets are helping.
so there we are,start of a brand new year.2013.will it be good?will i get worse?who can say.do i worry?yes,because of mum.i am not scared for myself. and PLEASE dont feel sorry for me,i am ok,so many worse off than me.just be nice to each other,i wont promise to read blogs or when i will post again,but you are all in my thoughts.Lucy my friend,an inspiration to us all.Herrad you keep a doin gal( this is norfolkese lol) and to you all reading this,a very happy new year to all.tc,see you on Facebook,mort xxxx
Friday, 2 March 2012
MY NEW BABY.FORD FIESTA ZETEC 1.25. got it home wednesday,and yes if you look closely the front tyre is flat.had to get tyre company out today. somehow it sustained a large cut in the sidewall. almost as if some jealous person shoved a stanley knife in it.nobody would be so mean. would they??? no comment.
lovely inside,comfortable,plenty of room to get mum in and out. and me.
Tuesday, 7 February 2012
The MS Society has announced that
The free two-day lifestyle event will take place at Manchester Central and is aimed at everyone affected by multiple sclerosis (MS), whether personally or professionally.
Providing an impressive programme of speakers, MS Life 2012 will allow attendees to learn about the latest in MS
There will also be a plethora of individual workshops covering a range of topics for visitors to attend, while the exhibition space will be split into separate zones. Within this space, visitors will be able to gain one-to-one advice and information from the Support, Employment, Mobility and Lifestyle Zones as well as meet the event speakers at the Meet the Experts Zone. On a further interactive level, visitors will also be invited to take part in activities such as yoga and pilates at the Get Active Zone, while the Spa Zone will offer the chance to relax with a massage or complementary therapy.
MS is a complex neurological condition with many symptoms which might include fatigue, vision problems and difficulties with walking. In the
Simon Gillespie, Chief Executive of the MS Society, revealed the popular event, which has seen around 7,400 visitors and over 200 exhibitors over the course of previous years, will be bigger than ever before. While the event is free, people are being urged to sign-up to confirm their place as soon as possible.
Simon says: “MS Life 2012 will have the theme ‘Get Active’, tying in with the Olympic year, so a range of activities will be on offer to celebrate this. In addition to research talks from world-renowned scientists, there will also be complementary health, relaxation and beauty sessions and exhibition stands offering support,
A number of interactive workshops will take place during the course of the event, from advice on how to manage symptoms, such as fatigue and tremor, to how to keep active with MS through cycling and exercise. Also included in the comprehensive programme are workshops on childhood MS and how positive psychology can be of benefit.
A colourful Wheel & Walk fundraising event, following the streets of
Simon adds: “Anyone with a connection to MS will benefit from the range of information available during the weekend. This is the best time for people to find out what scientists are doing to beat MS as well as take part in the more fun aspects of the event.
“MS Life has made its mark in
Michelle Oliver, Vicky Sanderson or Kim Bailey
Golley Slater Public Relations
0191 2459020 / 01943 484848
Notes to editors
· Previous MS Life events were successfully held in 2006 and 2008, both in
About MS and the MS Society
- The MS Society (www.mssociety.org.uk) is the UK's largest charity dedicated to supporting everyone whose life is touched by multiple sclerosis (MS), providing an award-winning freephone helpline(0808 800 8000), specialist MS information and funding more than 70 vital MS research projects in the UK.
- MS is the most common disabling neurological condition affecting young adults and an estimated 100,000 people in the
have MS. UK
- MS is the result of damage to myelin - the protective sheath surrounding nerve fibres of the central nervous system – which interferes with messages between the brain and the body.
- For some people, MS is characterised by periods of relapse and remission while for others it has a progressive pattern.
- Symptoms range from loss of sight and mobility, fatigue, depression and cognitive problems. There is no cure and few effective treatments.