i went to cromer hospital to see dr.C.the MS consultant.running dead ontime too i may add,awful wet and dreary day.lucky to get a space just outside main building.i went in and found linda my MS nurse.dr.C asked how i felt i was from last year,and told him around 25% worse.my swallowing now can be very awkward,etc.now linda had already told me he is the kind of dr.you either love or hate.direct is being polite.he looked at me and said,well morton,i am afraid your MS is going as i expect it too,as the nerve sheath is worn away,you will experience more problems,however because of your age i don't expect it to turn primary. like i was too old to have MS according to last neurologist??poor linda was making OMG faces at me as he was speaking lol.anyway,we shook hands as i left,i shall see him a year from now,i am increasing baclofen to another 1 a day,make appointment to see speech therapist about swallowing,etc.linda walked out with me and whispered i told you so,lol.are you ok mort?yeah,actually i am.i am not completley daft,i know well enough what can and may happen.one day at a time.i arent at that stage yet.
monday i had to be in norwich at hospital by 10.30,and was there at 10.plenty of time.........except.I WAS AT THE WRONG DAMN HOSPITAL i assumed it was my normal hospital.i was at the norfolk and norwich.actually i should have been at what was the old west norwich,now norwich community hospital.it didnt help the first idiot i asked where pain management was,sent me right round side to oncology.luckily i showed the nice receptionist the letter.so i had to ring them,lie through my teeth i waqs stuck in traffic and made my back to where i should be.half hour late.dr.was ok about it,he had seen another patient in front of me,he showed me the scan on my back,and discussed what we could do about it.basically...............until i am finished with the blood thinning tablets i am on for heart in november not a lot.putting me back on gabapentin,a drug i first was on to help with pain before the MS was diagnosed.it may help to dull the nerve pains i am getting from the prolapsed disc.later i may need injections into spine but frankly he thinks i am unlikely to be allowed surgery because of heart.what a day monday was.i didnt get home til gone 1,mum is still in bed.i rang dr.again tuesday as the pain was so bad,he came out and gave her colchicise tablets,a powerful remedy for pain relief of gout,quite dangerous and she only has 12.did seem to help.but last night things took a turn for the worse,as she got out of bed to use commode last thing,her bunion,which she has had for years,and which had swelled even larger due to the gout.........split wide open.blood everywhere,on carpet,sheets,poor mum.luckily i had a dressing from last time she had trouble,and quickly applied it,wrapped it well,and the bleeding stopped. rang surgery,and district nurse came out this afternoon,washed and re did it for mum.funnily enough she said as it burst the pain has eased a lot.still very bad,but i think she had an infection in that toe.please god she is on the mend.
now,back to social services. a very nice lady came to see me yesterday.(MPs office has beeen in touch by the way,i am writing a full report and mailing it to them next week.) she told me because i had rung again saying it was urgent i had gone from pending to the top of a very long list.anyway,we discussed mum,me,my MS,heart.she was astounded and very annoyed i had had my half hour morning call reduced to 15 minutes,agreed mum needed a further call in the evening,and is going to see what she can do. there is a provision now for direct payments,so i can hire a dedicated carer/carers to help.something to think about, a very useful meeting.
now due to various reasons,i am going to write more about this,and mums care,in the future.but in another blog. a private one,please mail me at email@example.com giving your email addresses if you wish to be a reader. the reason for this will be revealed on that blog.wont happen for day or 2. think of it as the black journal you can read,lol.
thanks for all the get well wishes to mum,and for me. take care all. as i write this it has been snowing again,wind frost,bitterly cold. roll on spring.