MS has been in the news a lot lately,with new treatments being heralded as breakthroughs in the treatment of this evil disease,sativex is an oral spray made from cannabis extract,and is aimed at progressive sufferers like myself.also funding has been announced in the States and Canada in the research of CCSVI,( chronic cerebrospinal venous insufficiency, dear god who thinks these names up.) a condition linked last year by an italian doctor dr.Paolo Zamboni who reported abnormalities in the veins draining the brain and spinal chord in MS sufferers,his ideas have caused widespread debate.also the furious debate about the threat of MS nurses under threat.my own dear lynda is now semi-retired and it looks as though there is a chance she will not be replaced.MS nurses are OUR first line of attack in out treatment of MS,they liaise directly between our consultants,and our GPs,physios,speech therapists,and other help we need.Lynda is much loved by north norfolk MS sufferers.she will be missed by many.
Now,WHY should YOU,dear reader care?yes its very interesting to those of us with MS,but you don't have it.or do you? many people who have MS just NEVER know they have it.some with very vague,faint,symptoms.others it never even causes any concern,and the only time it emerges they had MS is if an autopsy is performed after death. those are the lucky ones,but sometimes it strikes so rapidly. ask wendy,whose lovely daughter emma has been featured in this blog on a number of posts,ask my good friend Herrad,who suffers daily,or her husband and loving carer richie.or my second mom lucy,bless her,whose beloved son alan died.more and more new sufferers are diagnosed daily.100,000 is the new and revised,updated number for MS sufferers in the UK alone,that figure from the MS society,and it is steadily increasing.and every new sufferer needs help.here in north norfolk there is a group,LAMS,which is a lifeline for many.it has been mentioned on this blog,my lovely friend Myra is a volunteer there.it is based mainly in the east of our region,now there is talk of a west branch of LAMS being started up.maybe around Holt area? at the moment it is talk.a lot needs to be looked into.ideas for what people would like are welcomed by roger and his colleagues,so,if you have MS,or are a carer,or you know someone who has it,please.ASK THEM WHAT THEY WOULD LIKE IF IT WAS IN THEIR AREA. what help.amenities,information etc.THEY would like to see in a new MS support group. feel free to comment,or mail,or contact me on facebook,or leave ideas on LAMS facebook site. lastly,why should YOU CARE?? well,i was 55 when i was diagnosed,young children are being diagnosed weekly if not daily.it may be someone you know tomorrow who is diagnosed. it may even be you. and i pray to god it won't be. take care all.