well i went to see the MS nurse, at 3pm today. was with her over an hour, she was so helpful, wants me to try 2 new tabets,to help the pain and make my nights sleep better. i wake up after 3 hours,in a lot of pain legs very bad. also my ankle is playing hell. also is sending me to a speech therapist to help with my slurred speech i get sometimes and the swallowing problems. all in all, very helpful. i have also "volunterred" somehow lol to help a new chap she has just got. my age,just diagnosed and having trouble coming to terms with the idea. know that feeling. glad to help if i can. she is writing to my GP outlining these things, and to get him to change my tablets. unfortunately he is away for the next 2 weeks and i see her in 2 weeks time to see how i feel on them. so we will see there what happens.
as i have written before mum has a carer come in every day,tracey, to wash her and help her dress,30 minutes every morning,and a shower once a week. all has been well mum likes her,until this past 2 to 3 weeks,she has been getting to mine at 6.50 whips round and gone by 7.10. her firm is putting so much onto her she cant get round. so i have not been to happy. now,unfortunately mum mentioned this to my friend pam,when she rang mum last friday. even more unfortunate pam was being blunt drunk. she drinks,a lot. doesn't admit it mind. nooo not me mort, don't drink. now normally she wouldn't have taken any notice when mum said about Tracey. shame she wasnt normal. she rang traceys boss. her friend works for the firm tracey works for. and said were they aware tracey wasnt doing her job, etc. i had a phonecall from the boss,saying was this true? i said ok,she had been getting here early,and leaving before time,but mum liked her and it was the firms fault she had to rush round. anyway, because of pams interference mum now has only 15 minutes every morning,with 30 minutes on a thursday for shower. boss said as she was getting done in that time, that was all that was needed. i was furious. anyway,when tracey came monday i explained. then went over to pams. and told her in future to mind own business. i am writing to social worker, and complain about mum losing 15 minutes. it was social worker who decided on the 30 minutes, and they are now paying for 30 instead of 15. see what happens. i do wish pam stopped drinking.
lastly a few pictures. these show the baskets and tomatoes they have grown so much.
take your pick lol first should be ready by the weekend
take care all
25 comments:
Ain't it ashame, Helpful folks who can't mind their own business. I hate it when that happens. We like to try to work things out our selves, or mess them up our selves. We do it pretty well without someone's nose there. LOL
Beautiful flowers, and a lot of tomatoes on that vine.
take care and try not to get too much in a stew.
Jack
I hope the new meds work better for you. Sleep and pain, ah, such a combination. It took over a year (after my accident) before I got more than 2 hours at a time. Better now but I have empathy for your predicament. Mum needs the 30 minutes if only for the change of companionship. Besides, no proper woman can possibly geet ready in under 30 minutes! Joking aside, Mum deserves the full time and so do you. So there. Sorry about friends interference-I think her heart was in the right place but not the actions! I weep at he pictures- truly beautiful and tomatoes-oh joy I wish I had some now. There is another story here but for another time! Hugs and warm fuzzies, Dannelle
Sorry your friend Pam stuck her nose in where it didn't belong. Drinking is such an awful addicition. I hope the new meds help you with your pain. You sure have a green thumb. The photo's are awesome.
Hugs, Joyce
I am so so glad that you managed to see the MS nurse Mort, she will be such a help I am sure. I will look forward to hearing the results of the change n pills ec. pity your Doc. is away..can you not see one of the other doctors in the practice ? It is good to if you can be a help to another persn with MS. Once he has hot his head round the idea..like you he will be glad to have some support I am sure. I remember some 40+ years ago I and some others started up the Spina Bifida Ass. in Edinburgh as a lot of children had started being "kept" alive because operations had been found that enabled that. As I was by then a young woman at work Mum and I thought it might do some good to let the young parents see that all was not lost !! I think it helprd. As regards the "care" package that Mum has been getting I don't think that it can be changed without the social worker being involved...it's more not less car ehat you are both needing. Keep plugging away at them Mort. Although it was nothing to do with Pam at least the firm now know that they are working their staff to thinly spread around. Love Sybil xx
hi Mort, I thought that nurse sounded great and she is. you are doing a good job handling things for you and your mum. wow your garden looks delicious and your hanging pots are beautiful. My tomato plant has doubled in size. i am still enjoying gradening . it is frustrating at times.
lately my back has really been hurting. it is driving me crazy and i cant get comfortable at my computer. but no problems sleeping thank God.I have not been taking care of myself with all these family problems .sometimes i wonder why bother. maybe thats why your friend drinks so much. these are confusing times we live , full of problems all around.
I have my faith, and my dr.who to give me something to ease the pain.eagerly waiting for tommorow to let the Tardis take me off to adventure, lol
Beautiful pictures Mort, your flowers are stunning. I agree, people should mind their own business and stay out of things that do not concern them. I hope you get something sorted out and good luck on your new tablets when you get them.
Hi Mort, First of all your tomatoes look so good. Your flowers are beautiful. You, I know will stress to the place your mums carer comes from that she truly needs her full 30 min. I knoiw it is like pulling teeth to get the help- you need. I am afraid your friend is a hazard when it comes to you or your mum.. Anyone that drinks is so unpredictable. I guess maybe the only way to try to deal with her is to flat out tell her she must not make calls regarding your mum. You know Mort it may be just the trick to help this new man that is having a problem coming to terms with his diagnosis to have you help. It could wind up helping you both, in different ways. Alan got help when he was still living alone with housework like mopping floors, laundry and so forth... I wish you could get your pills sooner but as usual you will deal with it. You sound so hopeful for yourself and I am so happy to hear that. Lucy
Your plants and flowers look absolutely beautiful! You sure have a green thumb, but I can't grow anything but cactus! I'm NOT kidding!
I'm so sorry your Mum's time got cut. She needs that time to get ready. I can't imagine getting someone ready for the day in 30 mins let alone 15?? I can't even get myself ready in 15 mins!! What a joke that all is. I'm so sorry.
I hope the new meds help you. Let us know. Will be praying that they do.
Love ya, Pam xoxox
Here no caregiving professional is authorized to stay for only 30 minutes for bathing/dressing. I find that totally unacceptable, & I am sure anyone would(esp your Mom who has to be rushed like that). I am extremely doubtful she is scheduled so tightly that she needs to rush your mom thru bathing. I find that abusive. I would call the "boss" back. They are taking advantage of her & not providing good care.
The pictures are beautiful, Mort. The best part of this entry, the MS nurse was helpful :-). I am thrilled to hear that. ~Mary
Hi Mort .... i can imagine how angry you must have been at your friends interference, i am sure she thought she was doing the right thing, but she should not have interfered. The entire 'Social Care' organisation is short staffed and under funded, its disgraceful that only 15 mins is allowed, which i am sure the Carers are unable to keep to. You are quite right to write them a letter about it....keep presurising them till you receive the care your Mum is entitled to.
So happy you saw the MS Nurse, and hey lookie at you being 'Mentor' to a fellow sufferer - i am sure you will both enjoy the experience, Well Done :o) So the Nurse is changing your medication and setting up speech therapy, that is good news, its a great feeling knowing someone cares isn't it.
I am green with jelousy over the baskets Mort..... ok, i don't have baskets, i have patio tubs, will take a pic and post so you can see the difference !
Big Luv - Jaynee X
Glad you went to see the MS nurse :) and if you meet someone and help them then that can only be a good thing x That's so annoying what's happened between you, pam and tracey :( I hope it gets sorted so that your mum can be happy :o)
Jenny
http://journals.aol.co.uk/Jmoqueen/MyLife
Mort I read your journal but don't comment every time. Your flowers and veggies
are beautiful.
I admire your courage and stamina. I love the way you use a phrase. You are
going to ring someone where we say call. When people hit the bottle their
tongue get loose. Tell mum hello and hope she gets her time from a caregiver
she deserves for being such a patience lady. By the way I am Jack's sister I don't write a Journal just read them and comment.
Shirl
Mort I hope your Mum gets her time back with Tracey ~ how uncaring of her Boss to cut the time she spends with your Mum ~ Glad you have written to the Social Worker ~ Glad also the MS Nurse was so helpful and hope those new tablets help with the pain ~ well done "Volunterring" I am sure you will be a great help to that chap who has just been diagnosed ~ and your flowers are beautiful and I helped myself to some of the tomatoes :o) ~ Ally x
hey Mort you wont believe! sci fi channel showing a marathon of dr.whp today! even the ones with the old dr.[ eccleston ]i think is his name. watching the one where rose first meets captain Jack! oh i miss tortchwood.oh my , heavenly. God is so good. when i woke up this morning first thing i thought was WHY? then i opened my emails and saw that you had sent me some nice forwards.now my doctor is on all day. !!! lol hope you have a nice day as well, you and mum , june
I hope you can get that straightened out with the social worker and get the caregiver back to 30 minutes with your mom. And I hope that the new tablets you're taking help with that pain. One of my sisters is a speech pathologist. I hope that the therapy helps you with the speech and with the swallowing.
Lori
Aww Mort, Pam was only sticking her beak in because she cares, Hope the new pills work, I was going to come over this afternoon but got to Aylsham Hospital in the pouring rain, and because they have shut the slip road to Holt would have meant coming back to Hevingham before I could get on your road, by which time I was almost home. I promise i will blog today and let you catch up, the blog will tell all xxxx nina
Just popping by again to say I hope you have a happy weekend and that the weather is better for you than it is here.
http://journals.aol.co.uk/jeanno43/JeannettesJottings/
Just stopped by to say hello. Hope Mum is doing well.
You also of course. Jack
You plants look beautiful.
Hugs, Rose
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