well,ive just received a huge envelope from the MS society,and another with my welcome pack and membership details. very fast work. ive got a selection of booklets,one,just diagnosed with ms is brilliant,and now 2 copies of the MS bi-monthly magazine we get all this for £5 a year !!!!!! only just starting to read it,but already discovered i have to let DVLA know i have ms. i didn't know. also to be safe motor insurance co. also so much information,symptoms,etc. and in a very caring professional manner,not sugar coated,yet alarmist,just natural somehow. Discovered which type of ms i most probably have, but will keep that to myself until i see the ms nurse ( who rang me yesterday,i have an appointment on tuesday 23rd of this month at 3 pm i am going to kelling healtth cantre to see her,did offer to come hear but think best mum don't hear too much). i now realise that many of the symptoms,and trouble i have had lately are due to the ms. relief actually.
so things looking up,especially as also yesterday,lady from social services rang up. guess why??? I AM GETTING MY CARERS ASSESSMENT. at long last. next wednesday at 3.30 the same day as our housing trust are coming to sort out my bloody bathroom door and to fit me a new fan. I was so pleased to be FINALLY,after many phone calls,to be getting my assessment,see previous blogs for the whole sorry saga lol it was a bit strange when she told me she had only just had a referral for me to have an assessment. tut no comment lol. A different name from who i was expecting but i don't care if she is Buffy the vampire slayer,assess me lolol.
so,am i any happier? not happy no,dont suppose anyone would be . but easier in my mind, i now know more about ms,and i can cope. for mums sake ive got to. You see,yesterday i also snapped at my mum, she was asking me something don't matter what and i flew. and i didn.t mean too.she was ok about it,but i realised then,its no good me feeling sorry for myself. it won't help. i have ms. but,how much worse,it would be to say i have cancer, i have heart trouble, i have so many far worse diseases??? at the moment i can and will carry on,life goes on . so will i. take care all.
5 comments:
Hi Mort at least things are moving in the right direction, the MS Society sound really good and at least your getting the right information. Good luck next week with the carers assessment, and getting the bathroom done. With luck you'll start getting the help you and your Mum need and at least that will give some measure of comfort.
See you when I get back
Take care
Yasmin
I'm very pleased you're getting all the support you need, Mort. Yep, it could be worse, but MS is no kiddies' teaparty either.
Hi Mort -well it seems everything is happening at once eh? typical. Its all good tho, you must feel so much better knowing that you are getting there. You have someone on your side with the MS Nurse and do not have to feel so alone about everything. an by the way, a little self pity never did anyone any harm, your strong and you know it - keep smiling :o)
Luv Jayneee xx
Dear Mort I do admire you attitude ,it will help you get more money once the assessment goes through ,thank goodness ,keep your chin up ..love to Mum ...love Jan xx
Hello Mort. Not spoken to you in a while. Hope you got a lot more stuff organized today. I admire your outlook and find you extremely courageous. Love Pam xx
http://journals.aol.co.uk/pamal3/almost-40/
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